News
Hope For The Future
Listen to Cory Mosley's compelling story about how medical research is finding new treatments that mean real hope for him and his family. “We’ve had 39 members of my family in three generations diagnosed with ALS ... Up until recently, there was no real way to do anything about it. So, you just kind of go through life wondering when it’s going to hit. But now it feels a little different. There’s some treatment that is showing promise, that’s working for me. It’s working for other members of my family.”
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Hope for New FTD and ALS Treatments
This article discusses a potential breakthrough in helping to treat or even prevent FTD or ALS, in certain cases caused by abnormalities in a gene called C9ORF72. In lab experiments, researchers have found a way to block the effect of C9ORF72 abnormalities and stop the progression of nerve cell degeneration. This could lead to development of new treatments for FTD and ALS.
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Proclaiming "ALS Awareness Month" in New Prague and Prior Lake
We are grateful to the Mayors and City Councils of both New Prague and Prior Lake for their proclamations recognizing the month of May as ALS Awareness Month. They understand the importance of local grass-roots support in fighting ALS and other neuro-degenerative diseases that have no cure, and we appreciate their support in raising awareness in our communities. We are called to join the efforts to support ALS research, to advocate for increased funding, and to stand in solidarity with those affected by this relentless disease. Even after this month of awareness comes to a close, we will not rest until there is a cure ...
Clinical Trial Participants Have ‘Unprecedented’ Response to New ALS Treatment
A case study published by Dr. Neil Shneider of Columbia University shows that for a group of young people who participated in a trial of a genetically-targeted therapy to treat a specific form of early-onset ALS, the results far exceeded expectations. One young woman was able to recover her ability to walk and breathe without aids, and others were able to slow progression of the disease. This gives us hope that we are getting one step closer to a future where effective treatments are available to all people living with ALS.
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